| Organisation | Organisation website | Current member/s |
| Brainstrust | www.brainstrust.org.uk | Will Jones |
| Epilepsy Action | www.epilepsy.org.uk | |
| Headway the brain injury association | www.headway.org.uk | |
| Huntington’s Disease Association | www.hda.org.uk | Diana King |
| Migraine Trust | www.migrainetrust.org | Helen Dada |
| Motor Neurone Disease Association | www.mndassociation.org | Sal Hastings Colin Pearson |
| MS Society | www.mssociety.org.uk | |
| Muscular Dystrophy | www.muscular-dystrophy.org | |
| Myaware (Myesthenia) | www.myaware.org | |
| Parkinson’s UK | www.parkinsons.org.uk | Tracy Westgarth |
| Progressive Supranuclear Palsy | www.pspassociation.org.uk | Jenny Reynolds |
| Tourettes Action | www.tourettes-action.org.uk | |
| The Brain Tumour Charity | www.thebraintumourcharity.org | Helen Hills |
For more regional contact details please visit our regional directory.