The Huntington’s Disease Association exists to support people affected by Huntington’s Disease. It has a central information service, a regional care advisory service, local branches and groups throughout the country and a research programme.

It offers a helpline, twice yearly newsletter, publications and information, a welfare grant fund and helps to identify suitable respite breaks, residential and other services such as specialist clinics and day centres.

It also provides training sessions aimed at health and social care staff.

Details of all the services can be found on the Huntington’s Disease Association website,  by calling 0151 331 5444 or emailing: info@hda.org.uk.