Update from the last YHANO meeting (3 December 2019)
Priority 1 – working collaboratively to engage key regional strategic partners
- Humber neuro pathways review – this is ongoing and two stakeholder meetings have been held by the CCGs and services involved. We are working with one of the commissioners involved to get updates and feed information in to the process.
- RightCare progressive neurological conditions toolkit – this was published in September and includes information about improving services for people affected by MND, Parkinson’s, MS, multiple system atrophy and PSP. Unfortunately there are no plans for any of the Yorkshire Sustainable Transformation Partnerships / Health and Care Partnerships to do anything proactive with the toolkit. YHANO members are working to try to change this.
- Wakefield palliative care event – representatives from Motor Neurone Disease Association and the MS Society attended to highlight palliative care services available and the significant gaps for people with neurological conditions. The information is going to be fed back to a West Yorkshire wide initiative.
- DWP engagement event – a representative from the Motor Neurone Disease Association attended with people affected by MND. The event was positive and aimed to get feedback from people with long term conditions and disabled people about the current benefits system. The feedback is expected to feature in a Green Paper due in 2020.
Priority 2 – providing neurological education for health and social care practitioners
- Further neuro awareness sessions are scheduled for Kirklees and North East Lincolnshire Increasing Access to Psychological Therapies teams in January and North Lincolnshire social care teams in February.
Priority 3 – YHANO as a virtual network
- The Neurological Alliance Northern Meeting was held in October and updates included:
- The Association of British Neurologists is going to publish data on its website about long standing vacancies and about specialities and their spread across the UK to highlight issues.
- The Neuro Alliance is developing a directorate of conditions and where there are services to diagnose and support people and signposting for support.
- The Neuro Alliance will do a focus on rare conditions using information from its survey in 2020 linked to a national rare disease strategy that is expected next year.
Date of the next YHANO meeting
Tuesday 3 March. Get in touch if you want to join us.