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Update from the last YHANO meeting (3 September 2019)

Priority 1working collaboratively to engage key regional strategic partners

  • Mid Yorkshire update – we are going to wait for the new year to look at running a survey of people with neurological conditions accessing services at Mid Yorkshire NHS Hospitals Foundation Trust. We hope to work with Healthwatch Wakefield to do this, but would need to access funding to make it possible.
  •  Humber neuro pathways review – we are still awaiting information about what is happening as a result of the consultation. An update is expected in September/October.  
  • Humber Coast and Vale STP engagement event – Ruth attended. The focus was on existing priorities which don’t include neurology or neurological conditions. There were some workshops and Ruth highlighted information about the need for mental health support for people with neurological conditions, particularly at diagnosis and issues around infections (particularly UTIs) leading to unnecessary emergency admissions to hospital.
  • RightCare progressive neurological conditions toolkit – this was published recently and includes information about improving services for people affected by MND, Parkinson’s, MS, multiple system atrophy and PSP.It has been publicised and circulated by NHS England. There are no plans from the charities to do anything specific, but agreed that we should send the toolkit to commissioners we know to encourage them to use it.

Priority 2 – providing neurological education for health and social care practitioners

  • More successful neuro awareness events were held with Lincolnshire County Council, a Sheffield social care team and IAPT service in Rotherham.
  • Further sessions are arranged with mental health teams in North and North East Lincolnshire and Kirklees IAPT team.
  • Plans for 2019 are to continue to offer awareness sessions to social care and mental health teams across Yorkshire and the Humber.
  • Essex Neuro Network has produced an online accredited training course about neurological conditions. All agreed that we should circulate information about this to contacts, especially social care providers, as an opportunity to raise awareness of conditions and to complement the awareness work we are doing.

Priority 3 – YHANO as a virtual network

  • A Neuro Alliance mental health conference on 26 June and YHANO did a short presentation about its awareness work with mental health providers.
  • The next Neurological Alliance Northern Meeting is on 17 October, 11am – 2pm, in Leeds.

Other business 

  • The Universal Credit mandatory transfer pilot started in Harrogate in August. The local MS Society has arranged a briefing from the local Citizens Advice Bureau in October.

Date of the next YHANO meeting

Tuesday 3 December by Skype. Get in touch if you want to join us.